After months of delay, the U.S. House of Representatives passed an amended version of the Newborn Screening Saves Lives Act (H.R. 1281) on December 10, 2014. This legislation, which is extremely important to the four million babies that are born in the U.S. each year, will now be sent to President Barrack Obama for signature.
The amendment added section twelve to the bill, which is entitled "Informed Consent for Newborn Screening Research." The amendment will require federally-funded researchers to obtain consent from parents before using a baby's newborn screening sample for research. Existing research will not be impacted by the change.
If you liked what you read today, then don't forget to follow me: Email Subscription |Facebook | Twitter | Instagram | Google+ You may also be interested to read my op-ed about the Newborn Screening Act that was published in the Richmond Times-Dispatch earlier this year. In addition to the op-ed, I wrote a blog post about this legislation over the summer.