If you have been reading my three-part series concerning my personal experiences with a pediatric endoscopy, you are probably curious about Emily's biopsies and pathology results.
I have good news and bad news to share. The good news is that we are beginning to get answers to our many questions about Emily's low-volume eating. The bad news is that Emily has reflux in her esophagus and upper stomach. I have not yet received a copy of the pathology report, so I am unable to share the severity of the reflux at this time.
As a result of the reflux diagnosis, Emily has been prescribed a new medication. We are hoping that the new prescription helps with the reflux and makes Emily feel well enough to eat an appropriate amount of food and, in turn, an appropriate number of calories.
The pediatric gastroenterologist initially prescribed the reflux medication in capsule form. It must be given to Emily 15 minutes to one hour before her first meal. Since the medication is in pill form, Craig and I had to open the capsule and pour its pebble-like contents into apple sauce for Emily. As you can imagine, this apple sauce concoction didn't go over very well.
Getting Emily to eat bitter-tasting pebbles hidden in apple sauce was virtually impossible and created a bad eating experience at the start of the day. After a few days, I called the pediatric gastroenterologist and asked if there was an alternative to the capsule, such as a liquid. Luckily, the medicine could be compounded and be made into a liquid.
We found a special compounding pharmacy and had the drug made into a liquid. The cost increased, but the liquid medication was well worth the price. We now administer the drug to Emily via syringe. Although she still resists, it's much easier to get her to consume the liquid form of the drug than the capsule's pebble-like contents.
Emily will follow-up with the pediatric gastroenterologist and next steps will be determined at that time. I'm keeping my fingers crossed that she won't need any additional medical procedures. Please cross your fingers too!
If you missed my previous blog posts concerning our experiences with a pediatric endoscopy, please visit the links below: